TY - JOUR T1 - Evolving data access policy: The Canadian context AU - Dyke, Stephanie O.M. AU - Saulnier, Katie M. AU - Pastinen, Tomi AU - Bourque, Guillaume AU - Joly, Yann Y1 - 2016/09/15 PY - 2016 DA - 2017/01/01 N1 - doi: 10.1139/facets-2016-0002 DO - 10.1139/facets-2016-0002 T2 - FACETS JF - FACETS SP - 138 EP - 147 VL - 1 PB - Canadian Science Publishing N2 - In setting up a data access policy to share controlled access data from the McGill Epigenomics Mapping Centre (EMC), an International Human Epigenome Consortium (IHEC) partner project, we encountered ethical and legal challenges that are likely to be relevant to other researchers sharing data, especially from Canadian projects. We discuss our solutions to the following data-sharing challenges, based on comparative legal and policy analysis: (1) providing access to data to a growing number of researchers; (2) maintaining Canadian privacy standards while sharing controlled access data internationally; (3) freedom of information requests; and (4) providing more incentives for researchers to share pre-publication data. AB - In setting up a data access policy to share controlled access data from the McGill Epigenomics Mapping Centre (EMC), an International Human Epigenome Consortium (IHEC) partner project, we encountered ethical and legal challenges that are likely to be relevant to other researchers sharing data, especially from Canadian projects. We discuss our solutions to the following data-sharing challenges, based on comparative legal and policy analysis: (1) providing access to data to a growing number of researchers; (2) maintaining Canadian privacy standards while sharing controlled access data internationally; (3) freedom of information requests; and (4) providing more incentives for researchers to share pre-publication data. 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